Hello everyone! Happy mid-August. Grace and I have some updates for you all, so here we go!
Grace has finished her appointments with the specialist at Stanford. We’re grateful that a new medication from the Stanford doctor has improved Grace’s seizures so that when she encounters a light trigger, her body no longer goes completely limp. Her left hand still locks up though.
However, starting around May Grace has experienced migraines that come regularly after seizures. At worst these migraines have lasted 15 days, during which time Grace experiences intense pain, light and sound sensitivity, and nausea, despite multiple migraine medicines. Since these migraines can take days before they subside, every new seizure that occurs during a migraine prolongs the total migraine length.
Grace’s doctor at Stanford has recommended that we connect with further specialists back at Kaiser, so our relationship with members of the medical community continues to blossom. Doctors still don’t know exactly what’s causing Grace’s brain to do what it does. The plan is to continue to gather data in the hopes of finding a treatment plan that can address Grace’s sensitivity to light triggers.
So thank you for continuing to pray for us! God uses you all to sustain us on our journey. He is always able to do for His children more than any of us can ever imagine. He is always greater than anything this world can throw at us. Thank you all and to God be the glory!
Walking With Grace 
Always pray for your family and especially Grace’s seizures. Have you heard about Botox injections for migraines? Worth investigating. The Lord watch over and bless all of you.
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Praying for you and Grace. Thank you both for continuing to show us how to walk with Christ in your suffering!
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Thankful for some answers but still need more answers for migraines. I was hoping for complete answers from Stanford. May the Lord continue to hold you in His hands and find real answers to all of Grace’s needs. My heart goes out to you both and will continue to pray for more complete results.
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God bless you both.Job5:18,Deut.32:39,Hos.6:1,Mal.4:2
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You both are so strong!!!!! I miss you both, but I’m so glad you have great care up north.
I myself have been bouncing in between a ton of doctors and specialists for my heart and spine so I know it can be difficult.
You remain in my thoughts and prayers dear Grace.
God bless!🙏🏻 -Jen
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Continuing to pray for Grace. praying that the medical field find a solution for the seizures and the migraines. You both are an inspiration and a testimony to your faith in Jesus Christ. May God Bless you today and everyday.
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