Hello everyone! I mentioned in my last post I had some updates I’d planned to share back in March once we settled into our new home. That didn’t work out since I had to take a blogging break, but I’m excited to share them with you now as we enter summer.
This past January, I changed neurologists since the Kaiser doctor who’d been treating me after I left Stanford retired. If you’ve been reading the blog for a bit, you might have noticed that seizures and migraines determine a large part of my daily activities. If you’re a long-time reader, you probably know I have a complicated and often unpleasant history with neurology in general. Needless to say, I was nervous about meeting my new doctor: How could she handle my case when many sub-specialists had given up? I was skeptical since Kaiser San Jose is a local facility, while Kaiser Redwood City is regional and Stanford is national.
Thankfully I was wrong.
This newest neurologist has been the most proactive and open-minded doctor I’ve worked with to date, and she started adjusting my medications at our first appointment. Experimenting is physically unpleasant, but after three months we found a combination that reduces my seizures and even allows me to go out without sunglasses sometimes. Fewer seizures also means fewer migraines; this improvement has given me the highest number of pain-free days since 2019. (At my worst, I had a migraine 30 out of 30 days per month. Now I have 8-10 migraine days per month.)
These medical improvements, plus the fact that our new home is in a quiet complex far from the noise and flashing lights that typically come with a big city, should have made the March transition to our condo much smoother and healthier than it was. Still, Ivan and I are excited to explore our neighborhood now that I’m almost finished with treatment for the TBI complications from our move. Seizures, migraines, and TBI may be here to stay, but we’re grateful God provided a new doctor with an effective approach to my lifestyle challenges.
As always, thanks for your prayers and support!