Hello everyone! Happy mid-August. Grace and I have some updates for you all, so here we go!
Grace has finished her appointments with the specialist at Stanford. We’re grateful that a new medication from the Stanford doctor has improved Grace’s seizures so that when she encounters a light trigger, her body no longer goes completely limp. Her left hand still locks up though.
However, starting around May Grace has experienced migraines that come regularly after seizures. At worst these migraines have lasted 15 days, during which time Grace experiences intense pain, light and sound sensitivity, and nausea, despite multiple migraine medicines. Since these migraines can take days before they subside, every new seizure that occurs during a migraine prolongs the total migraine length.
Grace’s doctor at Stanford has recommended that we connect with further specialists back at Kaiser, so our relationship with members of the medical community continues to blossom. Doctors still don’t know exactly what’s causing Grace’s brain to do what it does. The plan is to continue to gather data in the hopes of finding a treatment plan that can address Grace’s sensitivity to light triggers.
So thank you for continuing to pray for us! God uses you all to sustain us on our journey. He is always able to do for His children more than any of us can ever imagine. He is always greater than anything this world can throw at us. Thank you all and to God be the glory!